Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: week

Mar 24 2013

Want a FREE $25 Google Play Store Gift Card?

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Big Fish Games is Paying It Forward

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Big Fish Games reached out to me this week and wanted to Pay It Forward. Big Fish Games is one of the biggest names in gaming, both mobile and online. They also know how important apps and games can be for people on the #Autism Spectrum and so they wanted to provide one of my readers with a $25 Google Play Gift Card.

This means that the winner will have $25 big ones to spend on any android app(s) or game(s) they see fit.

Please remember to support the companies that are Paying It Forward.

Important Note:

Please keep in mind that I’m working really, really hard to bring these giveaways to you, my more than deserving readers. This is one of the ways that I’m trying to help the community and give back. This is one of the ways that I’m Paying It Forward.

I’m getting a ton of entrees into these giveaways but I’m having a difficult time contacting the winners.

Please remember to check the date that the giveaways end and make sure to provide the correct contact information.

I pay out of pocket for most of the shipping costs and I would like each prize to go to the person who won. However, people are responding to emails or the email address is dead.

You have 24 hours from the point I email you, to respond and accept the prize. I hate having to pass someone up because of the 24 hours expires.

To quote Jerry Maguire, “Help me to help you. Help me to help you….”

Please don’t make me break out the movie quotes again….especially that one. :-)

Thanks,

Rob ;-)

 

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Permanent link to this article: http://lostandtired.com/2013/03/24/want-a-free-25-google-play-store-gift-card/

Mar 18 2013

Great start to the week

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Today has been pretty good so far.  I woke up this

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morning, actually feeling refreshed and ready to go. Elliott got up this morning without a problem and didn’t fight us about getting dressed and ready for school.

This is a great way to start the day, not to mention the week.

I’m really hoping that this bodes well for the rest of the week. We could could really use a good week:-)


This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/03/18/great-start-to-the-week/

Dec 21 2012

What were we thinking moving Gavin home?

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I wanted to keep you all updated on how Gavin has been doing since moving home earlier this week.

For those of you new to my blog, Gavin was moved out of the house about 2 months ago for behavioral reasons, and moved into his Grandparents house.

Gavin had been diagnosed with Reactive Attachment Disorder along with about a dozen other things, all serious. However, at this point in time, the RAD is the most serious of the mental health issues we are dealing with.

Gavin has become very, very volatile.

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We were experiencing massive, house shaking tantrums upto several times a day. The other boys were terrified and Gavin, having no conscience, simply doesn’t care.

Gavin lacks the capacity to truly feel empathy for anyone and make or maintain healthy relationships. He’s lacking the needed neurological connections for that to be possible. 

Having said that, he’s very well socialized and so he knows the right things to say, but there is a big difference between meaning what you say and just knowing what to say.

As you can imagine, that makes things very challenging.

However, this week Gavin had to return to the hospital for an autonomic crisis, one of his many health problems. His brain does not control his autonomic functions properly and so he has to be very closely monitored.

Gavin had missed several weeks of one of his medications and was not always adhering to the very strict, vitally necessary regime, set forth by the experts at the Cleveland Clinic. This is what eventually led to his recent crisis.  There is very little room for error when it comes to his health and it’s an overwhelmingly daunting task.

After talking with his doctors, Lizze and in decided that he needed to move back home. It’s the only way that we can ensure that everything is done.  We have to know, without a shadow of a doubt, that he has his meds and does not stray from what was set out by his doctors.

The only way we can do this is by having firsthand knowledge of Gavin‘s day to day activities. The only way we can have that knowledge is by moving him home.

Aside from his health and safety, this is extremely important because until he’s medically stable, he can’t enter into residential treatment and get the help that he so desperately needs.

We are so incredibly grateful to Lizze’s parents for allowing him to live with them, and my parents for picking him up from school every day. Without the help of our families, I do think know of we would have made it this far.

At this junction, Gavin has been home for 2 full days.

He’s been doing pretty well and to ensure that he continues to behave, we are implementing a very ridged routine that will help him to make better choices. A huge thanks goes out to his principle at school for helping put this routine together. 

I should also thank wraparound for continuing to help us reach our goal of getting Gavin into residential treatment.

This is a very long and difficult journey and we’ve already been on it for almost 13 years now.

All we can do is our best for Gavin, while ensuring the best interests and safety of his brothers.  If he becomes too dangerous once again, we’ll have to figure something else out.  However, for right now, this is the only option we have. 

Permanent link to this article: http://lostandtired.com/2012/12/21/what-were-we-thinking-moving-gavin-home/

Dec 17 2012

I’m so proud of Elliott

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I wanted to mention this because hopefully, it’s a good sign for what the rest of the week will be like.

Elliott has been struggling with life lately.  As a little boy with aspergers and significant anxiety, he’s unable to cope well with everything that has been happening within our life

He’s still upset about Gavin not living with us right now and understandably so. His recent diagnosis of food allergies as eliminated a huge part of his diet because it contains tree nuts.

What happens is that Elliott copes with this by trying to exert as much control over his life as possible. This presents as refusal to do things like eating and even cooperating.

Lately, we have been having a really hard time getting him ready for school.  He will flat out refuse to get dressed and most morning‘s results in a pretty big meltdown. As I’m sure you can imagine, this isn’t a positive way to start the day.

Having said that, today Elliott was up, dressed and cooperative.

This hasn’t happened in the last couple of weeks.

Elliott went off to school in a good mood.  I’m not sure what was behind this but I’m grateful for it.  I hated having to battle with any of my kids.  Unfortunately, that sometimes goes along with being a parent.

However, I’m grateful beyond words that I didn’t have to do this today.

It’s been a rough weekend for everyone and this was a well deserved, peaceful start to the week. I’m really proud of Elliott for making good choices this morning:-)

I made sure to let him know that as well.

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Permanent link to this article: http://lostandtired.com/2012/12/17/im-so-proud-of-elliott/

Dec 14 2012

Robby the snowman

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Elliott‘s homework assignment for this week was to create a snowman from things around the house

This is what Elliott came up with. 

He’s super proud of this and so are we.  He decided to name his snowman Robby, after yours truly.  :-)

Super cool……..

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Permanent link to this article: http://lostandtired.com/2012/12/14/robby-the-snowman/

Dec 13 2012

I will be giving away several tablets next week

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I’m super excited to announce that I will be giving away some tablets, sometime next week.  I don‘t have all the details but FedEx has them arriving next week

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Please stay tuned for more information and between now and then I will be sharing information about the people and company behind this amazing giveaway. 

I’m really excited. 

Please stay tuned. 

Permanent link to this article: http://lostandtired.com/2012/12/13/i-will-be-giving-away-several-tablets-next-week/

Dec 03 2012

The Leap of Faith: Plans may change again

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On Wednesday of this week, Lizze is scheduled to have a sleep study at the Cleveland Clinic. This is a prerequisite to entering the Chronic pain rehabilitation program.

They want to rule out sleep apnea as a contributing factor to her chronic fatigue.

However, Lizze has been and currently still is, sick. Apparently, if she isn’t feeling 100%, they sleep study will be scrubbed and rescheduled.

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On top of that, services for her Grandfather, who past away Sunday night, will be on Wednesday as well.

Lizze is going to be an emotional wreck that day and I can’t see her being in a position to take part in a sleep study. My guess is that we will have to reschedule.

Unfortunately, that will put her entering the Chronic pain rehabilitation program in limbo.

We don’t know how soon we can reschedule the sleep study and the follow up appointment with her sleep neurologist.

I know this sucks but right now, we have no control over these things and so we are going to do our best to take them in stride.

This is going to be a tough enough week as it is. Perhaps it’s all for the best.

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Permanent link to this article: http://lostandtired.com/2012/12/03/the-leap-of-faith-update-in-the-airair/

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