Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

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Jul 26 2013

#Autism Fact of the day: 07/26/2013

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Today’s Autism fact of the day is a really important one.  There seems to be a great deal of misconception about this particular fact and I believe that the community as a whole would benefit greatly from a better understanding.

I am of course, talking about the meltdown.

So many people assume that when a child with Autism  is throwing a fit that it’s a behavioral issue or that there’s bad parenting involved. 

The reality is that majority of the time, the child or adult with Autism in question, has absolutely no control over these outbursts.

These are called meltdowns and can easily be confused with tantrums. The main difference it What’s going on behind the curtain.

In the simplest terms, a meltdown is the body’s way of purging when it’s taken in more than it can process. Typically, a meltdown is a result of something called sensory overload . Many Autistic people struggle with sensory processing disorder as well. Essentially, they experience everythinggoing on around them, all at the same time.

Their body reaches a point where they can no longer cope and a meltdown happens.

Things that are common triggers of sensory overload include things like, bright or flashing lights, smells, being touched, constant or loud noise, colors, taste, texture, stressful/emotional situations and even large groups of people.

Many people incorrectly assume that a person in this state simply has behavioral problems.

I would challenge anyone to spend a few minutes in the shoes of a person with Autism, dealing with sensory overload and see if you could do better a better job of coping.

Please remember that a true meltdown is outside the control of the person in question. Also, parents do not need to hear things like, “your child needs his or her butt whipped”. Not only is that an erroneous assumption but also a pet peeve of many special needs parents.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Jul 26 2013

A little bit of fun

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This evening we took the boys to the playground and aside from Gavin’s little mishap, everyone had a good time.

It’s nice to see all three of the boys playing outside together and having fun.

I was able to grab a picture of them running together.  Gavin’s in the classic Sonic pose but he did much better this time around.  🙂

Depending on how today goes, we might to get them back there. We’ll have to see.  Free family fun can always be found at the playground.  🙂

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Permanent link to this article: http://www.lostandtired.com/2013/07/26/a-little-bit-of-fun/

Jul 25 2013

We had a little accident

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We took the boys to the playground this evening.  I sat in the car for a minute because T-Mobile just turned on the LTE towers but the signal stops about a mile from my house. 

We lost our Internet at home and so I was taking advantage of the connection to finish a few things up.

All three of the boys took off running towards the playground, with Lizze behind them.  She’s moving around a bit better today so she joined us. 

Anyway, next thing I know, I hear this loud bang. I heard it from well over a 100 yards away.

It was Gavin. 

He had been running like Sonic the Hedgehog, (See picture below) where he leans forward, throws his arms back and runs like hell.

Apparently he can’t run like Sonic and pay attention to where he’s going at the same time.  I say that because the loud noise I heard was Gavin running at full speed, right into the pull up bar or whatever it’s called. 

He hit that bar really hard and was knocked back on his butt. 

Thankfully he’s okay.  I think it scrambled his eggs a bit but he didn’t black out and doesn’t show any signs of concussion.

I’d like to say that he’s learned his lesson but that’s not likely to be the case. At least he’s okay and that’s all that really matters.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Permanent link to this article: http://www.lostandtired.com/2013/07/25/we-had-a-little-accident/

Jul 25 2013

Family is everything

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Lizze was able to let me sneak out again this morning for a little while. I spoke with my Mom this morning and she’s obviously and understandably upset about my grandfather (her father). He was diagnosed with prostate cancer this week and last night we found out it has spread to his bones. 

I went over and spent some time with her today because I wanted to make sure she was okay. 

My Mom rarely cries and hearing her start to choke up on the phone is really hard for me.  My parents live 5 minutes down the road so driving over there wasn’t anything.

I probably was there for almost 2 hours, I think anyway.

Family is very, very important to both Lizze and myself.  No matter what our own personal struggles may be, we will always make time to look after our family. 

The only time we won’t is if it’s best for the kids if we don’t. 

Family is everything and without it we would have nothing.  At least nothing that mattered.  I always tell people that I’m a happy person, despite all of our challenges.  The reason I’m happy is my wife and kids. 

Yes, it’s challenging but I wouldn’t trade my family for anything in the world, challenges and all.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Permanent link to this article: http://www.lostandtired.com/2013/07/25/family-is-everything/

Jul 25 2013

Uncertainty

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There are a great many things that I have to cope with on any given day. To be completely honest, I don’t even realize that things are as bad as they are anymore.  After all, this is all I know.

Having said that, there is one thing that I truly struggle with and that’s uncertainty.

Uncertainty is one of those things that eats me alive and keeps me awake at  night. I would guess that many special needs parents aren’t super fond of uncertainty and I can’t say that I blame them. 

For me personally, it’s essentially fear of the unknown. I don’t know what tomorrow brings and based solely on what yesterday dumped in our lap, I feel like I have reason to fear the unknown.

There are times that I can cope with this and times that I don’t do so well. 

Right now I’m in a place that I’m not coping as well as I could be.  We’ve lost quite a few family members this year, some were expected and others were completely unexpected.

Lizze has calling hours for her great uncle today and my grandfather was diagnosed with cancer this week.  Last night we learned that it’s spread to his bones.

It’s a lot to take in and process.

Not that I needed to be reminded but this year has taught me just how fleeting life can be and how uncertain tomorrow is. 

The truth is, you never know what tomorrow will bring with it. 

In my life, there is so much uncertainty.  Will my new job work out, how will we stay afloat or when will the other shoe drop? However, nothing is worse than the uncertainty of Gavin’s future and that weighs very heavy.

Because so much remains unknown about his health, we have no idea what to expect or just how bad things are going to get. 

It’s torture.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Permanent link to this article: http://www.lostandtired.com/2013/07/25/uncertainty/

Jul 25 2013

The hits just keep coming

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I just heard from my Mom about my grandfather. Unfortunately, it’s not good news.  The cancer has spread to his bones.

My Mom and Dad are going to Cleveland to see him at some point tomorrow. 

I would love to go with them but Lizze has calling hours at about the same time. Please keep my family in your thoughts and prayers.  This is a difficult time for all of us. 

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Permanent link to this article: http://www.lostandtired.com/2013/07/25/the-hits-just-keep-coming/

Jul 24 2013

Thank you to the supervisor at Jobs and Family Services

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There is finally a light at the end of the tunnel and we should arrive at that destination no later than Friday afternoon. 

Lizze got a call from a supervisor at Jobs and Family Services this afternoon. 

She explained that she can’t do anything until Friday.  If our caseworker hasn’t pushed the button on my family’s account, her supervisor will do it for her.

I’m not sure that I understand the logic of this policy but all we have to do is make it until Friday. Basically, we have one day left and we will be able to finally go full grocery shopping for the first time since the end of June. 

It’s been a really, really long month but we’ve made it this far.  We’ve had some help along the way and for that, I’m humbly grateful.

I was able to pick up a few odds and ends today but nothing significant.  Friday will be a really good day and I’ll put something in the crock pot.

I’m so grateful that we don’t have to try and make it through the weekend.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/07/24/thank-you-to-the-supervisor-at-jobs-and-family-services/

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