Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

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Nov 16 2011

Relocation 11/16/2011

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Autism

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November 16, 2011

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I just wanted to take a second and thank everyone for all your support. I want to thank the McCabe’s for taking it upon themselves to reach out and help my family by launching a fundraiser that you can read about in the stickied post at the top of my home page.

Thank you for all the generous donations that will assist in our relocation. Please remember,  do not feel obligated to help.  :-)

I thought I would update you all as to the progress of my search. 

I have been searching everyday via Realtor.com and the local papers.  Nothing has turned up thus far.  Again, I want to make sure that we do this right the first time. 

I will keep you all updated as to the progress.  Thank you again for all the love and support you have shown my family.

Please have a good afternoon :-)

– Lost and Tired

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Nov 16 2011

Fattest Squirrel EVER

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Autism

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November 16, 2011

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This is completely off topic,  however,  I thought it was pretty funny.  My neighbor loves squirrels.  He actually makes them little tiny peanut butter sandwiches.  He’s actually one of our nice neighbor’s. It just kills me when I see these squirrels scratch at his door when they are hungry. Then they sit there eating these tiny sandwiches.

Anyway, this squirrel is so fat that it can barely squeeze under the fence anymore. This thing is like a regulation size football, with a tail.
I just thought is was humorous and wanted to share.  :-)

Hope everyone is having a good day….

image

– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Nov 16 2011

Snuggly Emmett, Sleepy Daddy

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Emmett John

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November 16, 2011

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I saddened to say that Emmett has hit yet another cycle.  He has been running a fever since yesterday afternoon and has developed large cold sores on his tongue. 

He’s actually in a surprisingly good mood, considering.

If we had it to do all over again,  I don’t know that I would go through with the surgery he had a few months ago. While the surgery did lessen the intensity of the cycles,  they are no longer predictable.

The cycles used to hit like clockwork,  about every 3 weeks and last for 10 days.  Now they hit at random times,  often twice a week.  They don’t last as long but they are more frequent.  In a sense,  it’s worse now then before because we have no idea when the next one is going to hit and for how long.

Either way,  Emmett is super snuggly and while I wish he wasn’t sick,  I love and cherish these snuggle times.

image

– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Nov 16 2011

Have I mentioned I Hate our van?

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Autism

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November 16, 2011

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So my father, graciously have up his evening in order to help me with the van. 

It was already dark when we got out to where the van had died.  She started right up and then began this horrible grinding and screeching sound. 

It appears that the water pump has seized up and seems to at least be part of the problem.  I had have it towed yet again.  The towing company has towed the POS van several times now.  I should be earning some kind of frequent flyer points by now. 

The shop will hopefully get the van in first thing in the morning and if it’s just a water pump,  it should be a quick fix.  Quick maybe but certainly not painless.

I really truly believe this van just wants to die and be left alone. We keep bringing it back to life but the end result seem inevitable anymore. 

I want to thank my dad for giving up his evening to help me out with this.  I want to thank my mother for rescuing Lizze and Emmett when they were stranded and Lizze’s mom for taking the boys to school in the morning. 

I wouldn’t have been able to pull off today without you. :-)

image
image

– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Nov 15 2011

Today’s Victory 11/15/2011

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Emmett John

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November 15, 2011

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While some people would look at this and not see the victory,  I do.  As a special needs parent,  I have learned to see the bigger picture.

Why is this a victory?  Well the answer is simple. Emmett has two different kinds of food,  on one plate.  This never happens.

Not only is the food coexisting on the same plate but they are actually touching.  This is also a rarity.

Way to go Emmett.  I wanted to share this because I was really excited to witness this.

While it’s true that my boys struggle many areas,  I’m so proud of who they are and all the progress that have made,  both big and small.  :-)

image

– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Nov 15 2011

Scary thoughts

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Gavin

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November 15, 2011

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Gavin told me something yesterday,  that had gotten kinda lost in light of all the running around we had to do.
While on the way home from school and on the way to therapy,  he informed me that he’s having scary thoughts at school now. 

What does scary thoughts mean?  That’s a very good question.  Honestly,  no one really knows for sure.  However,  the common assertion amongst all the specialists is that scary thoughts is Gavin’s way of describing hallucinations.

Gavin,  while extremely intelligent,  lacks the ability to articulate much of what he experiences.  Scary thoughts is the best way he can describe what he’s experiencing.

The problem with not knowing for sure what he means is just that,  not knowing for sure what he means. 

It’s so difficult when you are dealing with a child as complex as Gavin because their just isn’t alot we know with absolute certainty. Despite Gavin’s best attempts to explain what he’s experiencing,  he just can’t do so in a manner the really helps to clarify anything.  The only thing we know for sure,  is that he is experiencing something that is very upsetting to him. 

As his father,  it’s frustrating and heartbreaking,  to not be able to know for sure what is going on.  We do know that the medications are helping.  However,  when he tells us about the scary thoughts we are left to wonder whether of not his meds are still working.

We have to then,  meet with the doctors and based on what we do know,  make a decision as to how to address this situation,  if at all. 

We get torn between wanting to provide him relief and not wanting to further medicate him. 
This is never easy….

– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Nov 13 2011

Whatever Monday, bring it on!

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Autism

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November 13, 2011

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We have a pretty busy week ahead of us.  We have therapy just about every day and several doctors appointments as well. 

However,  Thursday night,  Lizze and I have a date.  I surprised her with tickets to the new Twilight movie.  This is really the only thing she ever asks for and I got tickets a few weeks ago when they went on sale.

I’m pretty excited to get some alone time with Lizze.  We never get time alone and I think it’s so important for our marriage.

I just have this to say as Monday approaches.    Bring it on…..

– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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