Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: one

Mar 27 2013

One small step for Emmett, one giant leap towards independence

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Emmett is my 4 year old son with Autism.  He has a great many sensory processing issues and most of the time, can’t cope with the feeling of clothes on his skin.

Today however, he really made me proud because as bad of a mood as he has been in today, he did something truly awesome. 

While he refused to put his own clothes on (it’s just that kind of day), he did put his shoes and socks on all by himself.  He even puts his shoes on the correct feet and adjusted his socks as well.  Shoes and socks are Emmett‘s arch nemesis and he absolutely hates them most of the time. 

Today however, he managed to pull this off and I am super proud of him.  :-)

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



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Mar 24 2013

Want a FREE $25 Google Play Store Gift Card?

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Big Fish Games is Paying It Forward

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Big Fish Games reached out to me this week and wanted to Pay It Forward. Big Fish Games is one of the biggest names in gaming, both mobile and online. They also know how important apps and games can be for people on the #Autism Spectrum and so they wanted to provide one of my readers with a $25 Google Play Gift Card.

This means that the winner will have $25 big ones to spend on any android app(s) or game(s) they see fit.

Please remember to support the companies that are Paying It Forward.

Important Note:

Please keep in mind that I’m working really, really hard to bring these giveaways to you, my more than deserving readers. This is one of the ways that I’m trying to help the community and give back. This is one of the ways that I’m Paying It Forward.

I’m getting a ton of entrees into these giveaways but I’m having a difficult time contacting the winners.

Please remember to check the date that the giveaways end and make sure to provide the correct contact information.

I pay out of pocket for most of the shipping costs and I would like each prize to go to the person who won. However, people are responding to emails or the email address is dead.

You have 24 hours from the point I email you, to respond and accept the prize. I hate having to pass someone up because of the 24 hours expires.

To quote Jerry Maguire, “Help me to help you. Help me to help you….”

Please don’t make me break out the movie quotes again….especially that one. :-)

Thanks,

Rob ;-)

 

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Mar 13 2013

Oh…It’s gonna be one of those days

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Do you ever wake up in the morning and within a few minutes, know exactly how the rest of the day is going to go? Of course you do.  I would image that this happens to everyone at some point in time.

I’m having one of these days already. 

Elliott got to school late and Emmett has been screaming all morning. My bluetooth headset took a dump and I can’t seem to keep my eye open. 

What direction is this day going in? Downhill….. 


This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



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Dec 21 2012

WTF is happening to Elliott

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WTF has happened to my sweet Elliott Richard?  Anymore he is just such an emotional mess. I feel like he has just been pushed too far and is beginning to crack.

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He just screams and screams when the slightest thing doesn’t go his way. 

I’m so worried about him and I don’t know what to do. 

I try to spend as much one on one time with him as I can but there’s just not enough of me to go around. With Lizze being in the worst shape she has ever been, medically and emotionally, I’m stretched really thin.

I’m honestly beginning to feel like the only thing that is going to keep us together is a miracle.

I try really hard to be positive all the time but no amount of fluffy thinking and fairy dust is going to make this better. 

That said, if anyone has any extra miracles lying around, I could really use one for my family. I’ll be sure to do the same. 

At least this is the time of year for that.

Please keep Elliott in your thoughts. 

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Dec 21 2012

What were we thinking moving Gavin home?

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I wanted to keep you all updated on how Gavin has been doing since moving home earlier this week.

For those of you new to my blog, Gavin was moved out of the house about 2 months ago for behavioral reasons, and moved into his Grandparents house.

Gavin had been diagnosed with Reactive Attachment Disorder along with about a dozen other things, all serious. However, at this point in time, the RAD is the most serious of the mental health issues we are dealing with.

Gavin has become very, very volatile.

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We were experiencing massive, house shaking tantrums upto several times a day. The other boys were terrified and Gavin, having no conscience, simply doesn’t care.

Gavin lacks the capacity to truly feel empathy for anyone and make or maintain healthy relationships. He’s lacking the needed neurological connections for that to be possible. 

Having said that, he’s very well socialized and so he knows the right things to say, but there is a big difference between meaning what you say and just knowing what to say.

As you can imagine, that makes things very challenging.

However, this week Gavin had to return to the hospital for an autonomic crisis, one of his many health problems. His brain does not control his autonomic functions properly and so he has to be very closely monitored.

Gavin had missed several weeks of one of his medications and was not always adhering to the very strict, vitally necessary regime, set forth by the experts at the Cleveland Clinic. This is what eventually led to his recent crisis.  There is very little room for error when it comes to his health and it’s an overwhelmingly daunting task.

After talking with his doctors, Lizze and in decided that he needed to move back home. It’s the only way that we can ensure that everything is done.  We have to know, without a shadow of a doubt, that he has his meds and does not stray from what was set out by his doctors.

The only way we can do this is by having firsthand knowledge of Gavin‘s day to day activities. The only way we can have that knowledge is by moving him home.

Aside from his health and safety, this is extremely important because until he’s medically stable, he can’t enter into residential treatment and get the help that he so desperately needs.

We are so incredibly grateful to Lizze’s parents for allowing him to live with them, and my parents for picking him up from school every day. Without the help of our families, I do think know of we would have made it this far.

At this junction, Gavin has been home for 2 full days.

He’s been doing pretty well and to ensure that he continues to behave, we are implementing a very ridged routine that will help him to make better choices. A huge thanks goes out to his principle at school for helping put this routine together. 

I should also thank wraparound for continuing to help us reach our goal of getting Gavin into residential treatment.

This is a very long and difficult journey and we’ve already been on it for almost 13 years now.

All we can do is our best for Gavin, while ensuring the best interests and safety of his brothers.  If he becomes too dangerous once again, we’ll have to figure something else out.  However, for right now, this is the only option we have. 

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Dec 21 2012

Learning life skills at @GiantEagle

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I’ve written about this before but I’m going to write about it again.  I really feel strongly about trying to use everyday activities as a chance to teach my 3 boys with #autism important life skills.

We have some wintery weather blowing in soon and I wanted to pick up a few items at the grocery store, in case we get snowed in.

I grabbed Elliott and we headed off to our local Giant Eagle.  I swear it’s like we live at that store. 

Anyway, Elliott is 6 years old, has aspergers and loves learning new things.  Whenever he comes with me to the store, I always make sure to let him practice things like making good food choices, working within a budget, ringing up the groceries in the self-checkout and even bagging the groceries afterward. 

Some might be wondering what the point is.

That pretty easy to answer.  The point is that he’s gaining real life experience in a very important life skill. He’s going to need to know how to do this on his own eventually. 

The way I see it, it would be a crime not to take advantage of his eagerness to learn and desire to help.

During today’s trip, Elliott was ringing things out while I was bagging them up. When it came to the bananas, they have to scanned and weighed a little differently.  One of the cashiers that sorta floats around making sure no one else needs help, took it upon herself to teach Elliott how to manually enter the produce.

He was able to duplicate what she taught him and use that new knowledge on the next batch of bananas that needed scanned and weighed. 

He did a fantastic job and I was really impressed with the cashiers willingness to walk him through what he needed to do and tell him how good of a job he did, instead of trying to rush him though our cart of groceries and get us out the door.

This is one of the reasons I really loves hoping at Giant Eagle.

Taking the time to allow Elliott to get hands on experience might seem pointless to some but I see this as one step closer to his independence. 

Every skill he learns and masters now is one less that he has to learn in the future. 

I strongly encourage everyone to embrace these opportunities to teach. After all, you are your child’s most important teacher. 

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Dec 20 2012

Companionship for a child with #autism

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Even before I know of what #autism was and certainly before my kids were diagnosed, I had this one wish for them. 

Maybe this will sound weird to some people out there and maybe I’m just a dork, but here it goes. 
I grew up with a dog for most of my life.

I was fortunate enough to experience how that kind of companionship can make a child feel like.  I know how it made me feel.  I found comfort and unconditional love in our dog Dusty.

When I had children of my own, that was one of the things I wanted for them. Whether it was a dog or a cat, a fish or a bird, it didn’t matter to me.  I wanted my kids to have the bond,  that connection with another living thing. 

It has taken awhile but I can finally say that Elliott has discovered that with his kitten, Dean (although we do have a name change but that’s a different post).

When Elliott is sad, he snuggles Dean. 

At bedtime, Dean sleeps with him for most of the night.  Dean actually seeks Elliott out and looks for his attention.  It’s amazing.

I’m so grateful for that. 

Has your life or the life of your child been impacted by a special animal??

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