Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

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Jul 28 2013

Last night was Stephen King movie night

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If you follow my Facebook page, you know that Lizze and I were watching classic Steven King movies last night

As we were finishing the last 20 minutes of “IT”, Emmett came racing down the steps in a complete panic. Apparently he had another nightmare and was scared.

He fell asleep on Lizze, on the couch.

When Lizze and I were going to bed, I decided that Emmett and I would sleep on the couch because he wasn’t likely to sleep well and I wanted Lizze to get some rest.

Needless to say, it was a very long and restless night

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Jul 27 2013

Guilty Pleasures

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I battled the hoards of people at Walmart this afternoon and I emerged with a cart full of groceries.  I was on time and under budget so I treated myself to one of my guilty pleasures. 

Pull’n Peel’s and A&W Cream Soda are among my favorite junk foods that I don‘t get that often.

I felt victorious after surviving the craziness of Walmart on a Saturday morning and decided to celebrate a little bit.  Hey, on occasion I deserve it.  🙂

Do you have a family friendly guilty pleasure that you would like to share with the class?

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Jul 27 2013

Hello rainbow snowman

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While at my parents house yesterday, Emmett created this bright colorful snowman out of Play-Doh. 🙂

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Jul 27 2013

The night from Hell

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Lizze and I actually went to bed early last night.  She had a really hard time sleeping.  About 3am, Emmett comes running into our room screaming because he’d had a nightmare. 

He crawled into bed with us and fell asleep snuggling me. 

I couldn’t get comfortable because I’ve had this knot in my neck for about a week now and it causing me a great deal of discomfort. It’s like a pinched nerve and with Emmett wrapping his arms around me, I just couldn’t sleep.

Eventually, I moved downstairs to the couch and fell asleep. 

However,  Elliott and Emmett both, ended up on the couch with me at some point.  I don’t even remember what time that was but there was no sleep after that. 

I’m sooooo tired and my neck really hurts but I’m just glad the night from Hell is behind me.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Jul 27 2013

I think there’s a fugitive loose in my neighborhood

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For the last 30 minutes or so, we’ve been hearing helicopters circling our neighborhood.  We are also hearing police sirens and lots of dogs. 

The last time this happened, last summer actually, Canton City Police had chased a fugitive and they believed he was hiding in our yard. 

I want to go check things out but Lizze has forbid me from leaving the house. 

She’s right.

I just miss being in the middle of this kind of thing. When I was a paramedic, I was called out on some really cool situations.  By cool, I mean exciting and sometimes dangerous. 

I’m drawn to the things that others run away from. 

Oh well, I’m sure we’ll probably read about this in the paper this weekend and I fill you in on what happened. 

 

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Permanent link to this article: http://www.lostandtired.com/2013/07/27/i-think-theres-a-fugitive-loose-in-my-neighborhood/

Jul 27 2013

When it comes to feeding my 3 kids with #Autism and #SPD, presentation is key

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Those of you fellow special needs parenting veterans out there, you’re probably all too familiar with this particular battle. The battle I’m referring to is part of the never ending war to make sure our kids on the Autism Spectrum, eat. 

That may sound silly to those of you that have not ever tried to prepare a meal for an Autistic child with Sensory Processing Disorder.

I’m here to tell you that it’s not an easy task. 

Kids and even adults on the Autism Spectrum can be very, very sensory sensitive.  While this can present differently for different people, there tend to be some commonalities.

In the case of my kids, meal times are rarely easy.  The only exception is with Gavin.  He has become quite easy to feed and he’s really good about trying new things.  It’s such a blessing because he used to be so difficult.

My other two boys are extremely picky.  Although truthfully, picky isn’t the right word to use because it’s not really a conscious choice.

My boys are very, very sensitive to things like texture, taste, smell, color, appearance and even the packaging of their food. Thirteen years into the journey and I’m still learning new things, each and every day.  One the things I’ve picked up on is that there isn’t always a rhyme or reason to their food proclivities. At least not an obvious one.

I’ve talked about this struggle many times before.

When I make a meal for my family, I’m usually making at least three different meals because most everyone has unique needs.

We have food allergies that complicate things but we also major sensory processing challenges as well. They all add up to uber cooking challenges for yours truly.

To give you an example of a few of these challenges, here’s two of the most common.

Chicken nuggets. Chicken nuggets are greatest thing and yet the bane of my existence. Emmett loves chicken nuggets but only Tysons and only from the orange bag. If the label’s or packaging change, they will no longer taste right.  I’m being totally serious.

If a nugget is blemished or misshapened, they are deemed inedible.

When it comes to Elliott, he seems to be able to taste the slightest change in a food product. Perhaps something is seasoned slightly different, he knows and won’t touch it.

I’ve lost track of how many times I’ve heard “this doesn’t taste right”.

It’s honestly very stressful for all of us. It’s stressful for the because they really try but just can’t seem to move beyond some of these things. It’s stressful for me because many times it feels like a moving target and cooking has become a chore that I no longer enjoy.

I hope this has been insightful and given you a bit of perspective.

I would love to hear your experience in this area.. 🙂

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Jul 26 2013

#Autism is not an excuse

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Gavin’s had a so so kinda day today.  Unfortunately, we closed the day out with a tantrum and series of bad choices.

We held him accountable for not listening and causing trouble.  It wasn’t anything super major but it wasn’t the first time this evening that we had to speak with him about this issue. 

The consequence was that he lost his Yugioh cards and will have to earn them back.

Unfortunately, it didn’t stop there. When it was time for his meds, he was threatening to throw them across the floor. That cost him 10 Pokemon cards and he will have to earn those back as well.

Again, he didn’t stop. 

As he stormed up the stairs to get ready for bed, he screamed in Elliott’s face as Elliott was coming down the steps, sending him flying down the steps in a panic. That was very dangerous because we have an open stair case and even if it wasn’t, that’s not acceptable behavior in our house and he knows it. 

That earned him oatmeal for breakfast. 

He’s been pissed off all day because we stopped him from bossing his brothers around while they played together.  We stripped him of that power and placed the boys in charge of the games they were playing. 

We wanted Gavin to understand what it’s like to be in their shoes.  He didn’t like it and we had to constantly remind him of his role during playtime this afternoon. 

I think that it all came to a head this evening.

Some may think that we are being too hard on him.  I disagree.

You see, I want him to reach whatever potential he’s capable of.  I want him to be as independent as possible. In order for that to happen, he needs to accountable for his actions. It’s as simple as that.

He needs to learn that the world doesn’t revolve around him and that his actions can affect those around him.

Gavin doesn’t really possess a functional moral compass or common sense and so we have to essentially train him.  That’s not meant to be degrading or anything like that.  It’s just the reality of the situation.

Sometimes doing what’s best for your special needs child won’t win you any popularity contests because quite often the measures needed to address a situation may seem unusual or even harsh. 

The truth is that I don’t know any special needs parent that feels good about having to hold their child accountable.  Many times it so much easier to simply let things go because we feels so bad about all the challenges our kids face. 

While that approach is appropriate at times, that doesn’t negate the need to hold them accountable for their actions.  It doesn’t matter that they are Autistic or have Reactive Attachment Disorder, as is the case with Gavin.  The world will not cut them any slack and I feel it’s necessary that we prepare our kids for that reality. 

Obviously, I’m not suggesting that a child be punished for something outside of their control.  I’m suggesting that we remember that our kids, while special needs, are still just kids.  They are going to push the boundaries, misbehave, test the limits and just like any other child, there are consequences.

I believe that the consequences should be real and unpleasant but at the same time be developmentally appropriate.  I do not support any form of corporal punishment whatsoever.

Before I closed the door to Gavin’s room, I reminded him that tomorrow is a new day, a clean slate and that we love him.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Permanent link to this article: http://www.lostandtired.com/2013/07/26/autism-is-not-an-excuse/

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