Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: day

Apr 04 2013

How do you unwind after a day full of #Autism?

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There are days where we experience Autism in full force.  On these days, the boys are likely having a ton of difficulty with things.  They may be overstimulated or struggling with more sensory issues than normal.

Part of what’s so overwhelming for us as parents is the screaming and inability to really help them through what they are experiencing.

These are the days where I may have to remake breakfast, lunch and dinner, several times because someone is refusing to eat because something is wrong with their chicken nuggets.

Lizze and I refer to these days as a day full of Autism.

We don’t mean it in a bad way.  It’s just one of those days when the boys will experience more of the outward symptoms and are much more challenging to manage.

After the boys are safely away in their dreams, Lizze and I try to unwind. 

Depending on how bad the day was, I may sneak off to Walgreens for some cheap ice cream or Lizze will fall asleep while snuggling with me on the couch. 

It’s nice to have some downtime. It helps to keep us from going crazy and it’s also nice to spend time with my best friend, even if she’s sleeping next to me.  :-)

What do you do to unwind after a rough day?

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



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Mar 24 2013

Finding something positive in every single day

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Let me first say that not everyone can find something positive each day.  The truth is, sometimes there isn’t a positive.  Trust me, I’m all too familiar with that.  Please don’t feel bad if you have one of those days, weeks or years. …………….

With everything going on with Lizze’s aunt, today has been really bad.  Having said that, I really try to find something positive,  every single day of my life.

Despite everything that was going on today, I can easily point out a pretty big positive thing.

I had to give Emmett a bath tonight. 

Much of the time, bath time goes well until it come times to wash his hair.  Neither Emmett nor Elliott can cope with water on their face or in their ears.

However, tonight I gave both boys a bath and they each did really well.

I gave Emmett a bath first and Emmett set the bar pretty darn high.  Thankfully, Elliott did the same.  :-)

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/03/24/finding-something-positive-in-every-single-day/

Mar 24 2013

The highlight of my day

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Elliott and I spent some time together playing Minecraft on the XBOX.  Elliott and I have been playing in survival mode and having an absolute blast. 

I don’t spend enough one on one time with Elliott and this is one of the ways we are squeezing in some extra time.

This was the highlight of my day…….

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/03/24/the-highlight-of-my-day-3/

Mar 21 2013

I’m excited to find out how his day went

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Lizze is visiting with her aunt and my Mom came and picked up Mr. Emmett John so I could sleep. I have to be up in about an hour or so because I have to go get Elliott from school.

I’m excited to find out how his day went. 

My hope is that he actually ate his lunch today. 


This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/03/21/im-excited-to-find-out-how-his-day-went/

Mar 15 2013

Emmett had an awesome day

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Emmett had a very, very long day yesterday. We spent most of our day in Cleveland and a good chunk of the day in the car. 

He never once complained and was a little angel.

I’m so proud of how well he did and so glad he had fun. My Grandfather took us out to lunchbe at Applebee’s and Emmett behaved so well.  :-)

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/03/15/emmett-had-an-awesome-day/

Dec 22 2012

Progress report

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So far, Gavin is doing really well.  He’s slipping up here and there but overall he’s doing well so far.  I’m really hoping this will last but the reality is that we are in a honeymoon phase.

I’ll take every good day that we’ll can get.  :-)

Permanent link to this article: http://lostandtired.com/2012/12/22/progress-report/

Dec 21 2012

What were we thinking moving Gavin home?

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I wanted to keep you all updated on how Gavin has been doing since moving home earlier this week.

For those of you new to my blog, Gavin was moved out of the house about 2 months ago for behavioral reasons, and moved into his Grandparents house.

Gavin had been diagnosed with Reactive Attachment Disorder along with about a dozen other things, all serious. However, at this point in time, the RAD is the most serious of the mental health issues we are dealing with.

Gavin has become very, very volatile.

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We were experiencing massive, house shaking tantrums upto several times a day. The other boys were terrified and Gavin, having no conscience, simply doesn’t care.

Gavin lacks the capacity to truly feel empathy for anyone and make or maintain healthy relationships. He’s lacking the needed neurological connections for that to be possible. 

Having said that, he’s very well socialized and so he knows the right things to say, but there is a big difference between meaning what you say and just knowing what to say.

As you can imagine, that makes things very challenging.

However, this week Gavin had to return to the hospital for an autonomic crisis, one of his many health problems. His brain does not control his autonomic functions properly and so he has to be very closely monitored.

Gavin had missed several weeks of one of his medications and was not always adhering to the very strict, vitally necessary regime, set forth by the experts at the Cleveland Clinic. This is what eventually led to his recent crisis.  There is very little room for error when it comes to his health and it’s an overwhelmingly daunting task.

After talking with his doctors, Lizze and in decided that he needed to move back home. It’s the only way that we can ensure that everything is done.  We have to know, without a shadow of a doubt, that he has his meds and does not stray from what was set out by his doctors.

The only way we can do this is by having firsthand knowledge of Gavin‘s day to day activities. The only way we can have that knowledge is by moving him home.

Aside from his health and safety, this is extremely important because until he’s medically stable, he can’t enter into residential treatment and get the help that he so desperately needs.

We are so incredibly grateful to Lizze’s parents for allowing him to live with them, and my parents for picking him up from school every day. Without the help of our families, I do think know of we would have made it this far.

At this junction, Gavin has been home for 2 full days.

He’s been doing pretty well and to ensure that he continues to behave, we are implementing a very ridged routine that will help him to make better choices. A huge thanks goes out to his principle at school for helping put this routine together. 

I should also thank wraparound for continuing to help us reach our goal of getting Gavin into residential treatment.

This is a very long and difficult journey and we’ve already been on it for almost 13 years now.

All we can do is our best for Gavin, while ensuring the best interests and safety of his brothers.  If he becomes too dangerous once again, we’ll have to figure something else out.  However, for right now, this is the only option we have. 

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Permanent link to this article: http://lostandtired.com/2012/12/21/what-were-we-thinking-moving-gavin-home/

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