Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: darn

May 31 2012

Addressing #Autism’s misconceptions with creativity

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There is so much misconception in the world about #Autism.  There is an assumption that kids in the spectrum are somehow less intelligent than their typical peers. 

This however,  couldn’t be farther from the truth. Kids on the #Autism spectrum are among the smartest there are.

What I think happens is that people make assumptions based on a child’s behavior or ability to talk. That is a horrible mistake. While it’s true that kids with #Autism can be challenging, present with major behavioral problems or maybe not be able to speak,  that it not a reflection of who they are on the inside.

My kids,  while extremely challenging,  are both super smart and very creative.

Today I want to share Emmett’s latest creation. 

I can’t remember what these blocks are called but they are a ton of fun for the boys.  Today,  Emmett was putting together silly creatures.  This was my personal favorite.

He didn’t name it but who cares.  It’s still pretty darn creative.

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Permanent link to this article: http://lostandtired.com/2012/05/31/addressing-autisms-misconceptions-with-creativity/

Mar 21 2012

How I got a PlayStation Vita

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This is more for the techies out there that like video games.  :-)

I have been playing video games since before Nintendo was even know the radar. I was always fascinated by them. 

Fast forward to present day and my kids have all followed in my footsteps. I’m sure you have heard me talk about Elliott and his 3DS -thanks to Best Buy- as well as Gavin obsession with video games.

I have had a game console on and off for years. I would purchase an XBOX 360 or PS3 with tax return,  when money allowed for it. 

Inevitably,  at some point throughout the year something would happen and I would either sell it to come bills or trade it in to GameStop because it was causing to many problems with the kids,  namely Gavin. I would get tired of the drama in the house because of something related to video games.

I hated getting rid of them because they were an escape for me. I loved Call of Duty and burned off a great deal frustration online playing team deathmatch.

Last year at tax return I decided to get an XBOX 360 back with tax return in January 2011. It worked out great for a long time and the kids loved Kinect.  However,  it started to die and rather then deal with Microsoft,  we I traded it in to GameStop.  They said they would refurbish it anyway.

Between,  in store credit I had been sitting on and everything I was trading in,  it was an even swap into a PS3 and a few used games.

That worked out well for a few months but within the past 30 days or so, it became a source of frustration once again because,  when anyone would play it,  Emmett would rip the controller out of their hands.  Then of course,  the screaming and the yelling would follow.  As much as I liked it,  I couldn’t deal with all the fighting. We had tried all kinds of things to make it work but Emmett is very challenging and it just wasn’t worth it.

What I would do typically,  is trade it in and just sit on the credit.

However,  recently Best Buy began taking in trades and so I thought I would check it out.  I ended up trading in some old electronic stuff,  all my PS3 games and cashing in my reward zone points I had been saving for a rainy day and getting a PlayStation Vita.  I actually got more in credit than what I needed,  so that was cool.

I took the actual PS3 system into GameStop and had it added to my in store credit.  I grabbed a few accessories for the Vita and saved the rest for later.

This worked out quite well because I didn’t have to spend a single penny and I have credit left over for other things later.  Now I can play my games anywhere and then put it up and out of the way.  Hardware-wise,  it’s pretty darn close to the PS3 in terms of graphics,  which is really cool.

But the most important thing is that I found a way to have my escape and not have it create drama in the house.  It’s kinda like having my cake and eating it to.

Sometimes I have to be creative in order to make things work.  Since I couldn’t stand the fighting over what we had,  I turned it into something I could still enjoy and it didn’t cost me anything.  When you don’t have a lot of money or any at all for that matter,  it takes patience and some creativity to obtain any type of luxury item.

This is the only material thing I have left and I feel good that I was able to still have my escape and solve a problem at the same time. 

If you have old TV’s, computers, printers ect,  take them into Best Buy and get a gift card in exchange.  They aren’t worth anything to sell for cash but maybe you can get something with the gift card that you wouldn’t have been able to otherwise, like I did.  :-)

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/03/21/how-i-got-a-playstation-vita/

Mar 21 2012

When you have more questions than answers

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I’m feeling quite overwhelmed as of late.  We keep receiving more and more bad news.  I mean,  bad news is probably the wrong word choice but it’s pretty darn close.

The latest addition to the Lost and Tired family symptoms list is now seizures. I was positive that I was going to get the EEG results back for both Gavin and Elliott and everything would be normal.  I wasn’t prepared to hear that they are having seizures.

Honestly, I don’t even know what to do with that information.  The only experience I have with seizures is as a paramedic. 

I always say that I hate going to an appointment looking for answers and end up with more questions. That has been the status quo for as long as I can remember. Yesterday was one of those rare occasions where we actually got answers. 

However,  we got just enough information to worry.  We simply don’t know enough yet and so more tests are going to be needed.

I have to say,  the most frustrating part for me is that we still don’t know why any of this is happening in the first place.  I have no health problems, aside from my cholesterol is out of balance.  Lizze has tons of health issues but most of these are caused by long term stress and not something that would necessarily be passed down to the kids.

Why is it then, that they have all these bizarre health issues?  We’re not even talking common disorders.  I mean,  some of these issues are very rare.

I just don’t know what to do at this point.

Seizures are the newest problem that we have to contend with.  They have likely been there all along,  just undetected.  We were blissfully ignorant for all this time and now that we know about the seizures,  we are worried.

I don’t think there are enough. Antidepressants in the world to even take the edge off.

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

MyFreeCopyright.com Registered & Protected

Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/03/21/when-you-have-more-questions-than-answers/

Mar 17 2012

#Autism: What to do with down time

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If your anything like me,  not that you would want to be,  you relish every break you get from the trials and tribulations of special needs parenting.  For me,  it’s not that I don’t like being with my three boys with #Autism,  because I do,  it’s just nonstop and exhausting.

A few times a year,  my wife and I find ourselves childless for a few hours. Today is one of those rare days where Emmett is with my parents and Elliott and Gavin are with Lizze’s parents. 

You would think this is a good thing and it is but it’s also a challenge in and of itself.

Perhaps that sounds weird but let me explain.  First of all,  this hardly ever happens. Sure we might be down one or two kids at times but never all three.

Secondly,  the frustrating part comes into play when trying to decide what to do with the free time. I mean the very first thing that comes to mind is simply,  going to sleep.  As special needs parents,my wife and I never get enough sleep. 

However,  at the same time,  it seems like a waste of time.

I say a waste of time because there is sooooo much that needs to be done around the house.  The only chance I have to really play catch up is these rare occasions when all the kids are gone at the same time.

Like my favorite TV character,  Adrian Monk used to say,  it’s a blessing and a curse.

That’s actually pretty darn accurate too.  It’s great to be without the kids every once in awhile,  but because it’s such a rare occurrence,  it’s tough to figure out what to do with the free time.
Should we take advantage of time and rest up in preparation for their inevitable return or spend the time cleaning the house and getting caught up on everything that has been put on hold?

Do any of you ever have this,  and I hate to use the word problem,  but problem?

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android

Permanent link to this article: http://lostandtired.com/2012/03/17/autism-what-to-do-with-down-time-2/

Jan 11 2012

A candid moment with Emmett

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This afternoon, Lizze had backed some biscuits for the boys. Emmett refers to them as cinnamon rolls for some reason. Apparently at some point, Emmett and Elliott had both left their biscuits -on the a plate- on Elliott’s bedroom floor and walked away.

Having found them unguarded, Maggie took advantage of the situation and gobbled them up.

Emmett was very mad. I got him on film, explaining -in his own words- what exactly had happened to his beloved biscuit. This first video is him trying to explain what had happened and the second video is Emmett reenacting what had happened. It’d pretty darn funny and cute. If you have had a day like mine, you just might appreciate this :-)

 

 

The reenactment

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Permanent link to this article: http://lostandtired.com/2012/01/11/a-candid-moment-with-emmett/

Nov 03 2011

Antibody Infusion #4: The IVIG Infusion

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The IV has been placed.  Also,  we arranged for Akron Children’s Hospital to draw the blood for Gavin’s weekly blood draw.  This way he doesn’t need to traumatized a second time today.

The IVIG Infusion will take a few hours to finish.  Gavin will be having pancakes and sausage for lunch.  I, one the other hand,  am fasting for my cholesterol check I have to have done on the way home today. 

Lizze is home sick with Mr. Emmett John today.  I’m so tired and I’m getting pretty darn hungry.  I’m anxious to see how far my cholesterol has come down.  While I haven’t been walking,  I have been eating better.  My last check had me down to about 160 from 210. :-)

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– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

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Permanent link to this article: http://lostandtired.com/2011/11/03/antibody-infusion-4-the-ivig-infusion/

Oct 01 2011

Nightmares

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I think in pretty darn frustrated with Gavin.  Gavin decided that it would be a good idea to tell Elliott some horror stories before they went to bed tonight. 

These stories involved zombies,  decapitated people,  and a few other grossly inappropriate things.

Elliott comes downstairs to let me know why Gavin was telling him.  I call for Gavin very calmly,  even though I’m actually pretty ticked off at this point. 

The moment he hits the stairs it’s an instant meltdown and drama ensues.

I wanted to know why he would say these things to his little brother again.  I say again,  because this has been an issue before and it had to be dealt with then and clearly we’re gonna have to do this again.

Gavin goes to bed and I’m left with a really nervous/anxious 5 year old who is afraid to sleep alone now.

Guess Who’s in the couch tonight.  ;-(

Gavin is driving me absolutely crazy today.  I don’t know what’s going on with him but to say he is struggling would be an understatement,  as would saying that I was merely frustrated.

Tomorrow is a new day and brings along with it a clean slate.  I just need to locate my reserve of patience and I’ll be ok….I think.

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– Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

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Permanent link to this article: http://lostandtired.com/2011/10/01/nightmares-4/

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