Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: aspergers

Jul 19 2013

First of its Kind XO Tablet Helps Kids Learn and Explore Their Dreams

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Again, this is not a paid post. However, I love to share information about technology that can benefit my readers and their families. Let me know what you think.

 

 


 

First of its Kind XO Tablet Helps Kids Learn and Explore Their Dreams (via PR Newswire)

XO Tablet Makes Learning Fun with Free Educational Apps Plus Full Android Functionality On the Only Multilingual, Multi-User, Google-Certified Tablet New tablet designed and developed by One Laptop Per Child for sale in the U.S. by strategic partner…

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Permanent link to this article: http://www.lostandtired.com/2013/07/19/first-of-its-kind-xo-tablet-helps-kids-learn-and-explore-their-dreams/

Jul 19 2013

Our trip to the Cleveland Clinic for today is canceled. Find out why

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Gavin has an appointment at the Cleveland Clinic. This one is for Urology and it’s purpose is to address his bladder control issues.

Dr.  Moodley, his autonomic specialist, wants to make sure that there isn’t a physical problem with his bladder.

The most likely cause of this bladder control problem is the autonomic dysfunction. However, we do need to rule everything else out first. From a psychological perspective, this type of issue is very common with Reactive Attachment Disorder kids and is a willful act.

Our goal as this point is to simply rule out a physical problem with his bladder. 

Anyway, I made the appointments and put them in the calendar. I say appointments because he actually has 3 of them.  He’s having an xray and ultrasound done prior to his actual appointment with the Urologist.  That makes 3 separate appointments.
My Mom was going to watch the boys today so Lizze and I could go. 

I even sold my phone to help pay for fuel. 

This afternoon, I went to double check the times and when I logged into his MyChart, it turns out his appointments aren’t until the 24th.

Not sure how I screwed that up but I’m really glad we found out before making the drive as that would have been a bummer.

As it stands now, our Friday is wide open to whatever adventure life decides to hurl at us. 

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Permanent link to this article: http://www.lostandtired.com/2013/07/19/our-trip-to-the-cleveland-clinic-for-today-is-canceled-find-out-why/

Jul 19 2013

Have you ever wondered why I love my life, #Autism and all?

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People ask me what I like most, if anything about my life. That’s a really loaded question but one that easy to answer.

I thought I would share this video I shot of Emmett yesterday. 

This is just one of the reasons I love my life.  Just try to watch this without smiling, I dare you.  🙂



This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/07/19/have-you-ever-wondered-why-i-love-my-life-autism-and-all/

Jul 18 2013

Please say a prayer for my Grandfather

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As you know, my Grandfather had surgery this week to remove a tumor from his bladder.  The surgery itself went well and we still waiting to find d out if it’s cancer.

However, he’s still in the hospital and my Mom called tonight to let me know that he’s not doing so well. 

He’s still losing blood to internal bleeding and they can’t find the source.  He’s also running a fever and and his speech is slurred. 

They’ve ruled out a stroke or TIA but they aren’t sure what’s going on. 

Lizze and I are going to be very likely making the trip to Strongsville in the morning with my parents. Lizze’s Mom is going to try and get off of work to watch the boys. 

I don’t know how serious this really is but it doesn’t sound too good. 

Please keep him in your thoughts and prayers. 

Thank you so much.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/07/18/please-say-a-prayer-for-my-grandfather/

Jul 18 2013

Sick and tired on your Birthday

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Lizze is celebrating her 33rd Birthday today.  Unfortunately, she’s spent most of the time sick and tired. The boys and I sorta just hung out downstairs while she was resting. I’ve hardly written at all today as a result. 

The boys are all in bed and Lizze wants to just hang out on the couch tonight and watch Supernatural.

Sounds like a plan to me…….

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/07/18/sick-and-tired-on-your-birthday/

Jul 18 2013

My thoughts on Jenny McCarthy, #Autism and #Vaccines

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I want my readers to know how I feel about this whole Jenny McCarthy and The View debacle. First of all, I don’t watch The View and have no intention of changing that.

Here’s the problem, as I understand it. 

Jenny McCarthy has been an outspoken opponent of vaccines for a very long time.  Her crusade began after her son showed what were consider signs of Autism, after his vaccinations.

image

As it turns out, he didn’t have Autism but some other genetic disorder that she was able to address with the GFCF Diet. 

Did vaccines have anything to do with this at all? I have no idea. 

I think that she has the right to share her personal experience as well as her own opinion. However, where I have a problem is when she began telling people what to do. She’s a person of great influence and the general public can be easily influenced, especially by someone as beautiful and charismatic as she is. 

When you are in a position like she is, there is a tremendous level of responsibility on your shoulders. This is where she faltered and in my opinion became very dangerous. 

Instead of sharing her experience with others and saying something like, hey this is what worked for my son, talk to your doctor and see if it could help yours, she basically assumed that her understanding of what happened to her child, applied to everyone else.

Vaccines are bad and GFCF is good.  While I don’t have an issue with the GFCF Diet, I would never suggest to anyone that it was appropriate for their child, as I’m not a doctor. 

Her claims about vaccines are not based on scientific fact, which is the world standard for proving something beyond a doubt. Instead, they are based on opinion, misinformation and fear.

In my opinion, this is extremely, extremely irresponsible and dangerous.

When anyone tells another person not to vaccinate they’re child, especially when you are not a doctor, should be considered highly suspect. Jenny McCarthy lives in a fantasy world, that exists outside of what is widely accepted and proven medical and scientific fact. 

She absolutely has a right to her opinion. However, when you are presenting your opinion as fact and influencing others to follow in your footsteps, that crosses a line.

How many children have become sick or worse as a result of Jenny McCarthy’s propaganda? How many kids were diagnosed with Autism, even though they never received a vaccine?

These are all serious questions.

She had a responsibility to her fans and anyone that listened to her and she let them all down. 

Here’s the thing and I do my very best to live by this as well. 

When you are in a position of influence, you have to be very, very careful what you say.  Because of your influence, popularity or celebrity status (as is the case with Jenny McCarthy) people will take what you say very seriously.  They trust you and assume that what you are saying is true, even if that’s not the case.

Speaking for myself and Lost and Tired, I would never tell anyone what to do for their child.  I’ve shared my experience and opinions but they are based on my family.  What works for mine, may not work for yours.

I’m asked all the time by parents, if they should vaccinate their child.

My advice to them is simple.  I tell them that I can’t advise them on what to do for their child.  I explain that my kids are vaccinated and I personally believe in vaccines. However, they need to speak with their child’s doctor about what’s best for their child.  Any doctor worth a dime, would be more than happy to discuss the pros and cons of vaccines.  If they aren’t willing to discuss your concerns, perhaps you should consider looking for a new doctor. 

The truth is that just because my kids did well with vaccines, doesn’t mean that yours will. Likewise, just because your child was vaccine injured, doesn’t mean that mine will be. 

Vaccine injury is very, very rare but it does happen. 
People always point out to me that thousands of people are injured by vaccines, so they must be dangerous. 

While each and every one of those injuries are heartbreaking and tragic, they are few and far between.  You have to remember that millions of people are vaccinated each year. If 10,000 people are injured, that a whopping 1%.

You have to keep these number in context. 

When someone provides evidence that 10,000 people are injured by vaccines, people panic.  However, if those same people were provided with the full set of data, their reaction would likely be different. 

This isn’t meant to belittle anyone’s experience, in regards to vaccine injury.  You just have to look at the whole picture. 

Jenny McCarthy hasn’t done that and she continues to encourage parents to withhold vaccines. This goes against what the medical and scientific community overwhelmingly recommend.. These are people with medical and scientific backgrounds. They also have proof to back up their claims. 

When it comes to Jenny McCarthy cohosting The View, I’m concerned that it sorta legitimizes her views and opinions.  That could be very, very dangerous, for all of us. 

However, I will say this.

Neither I, Jenny McCarthy or any other non-medical person, should have any influence over your decision to vaccinate or not vaccinate your children.  Only you and your child’s doctor can decide what’s right for your child.  Educate yourself before making any decisions one way or the other. 

In closing, I want to say that while I believe in vaccines, there are always risks.  There is no way to know how anyone’s child will react because we are all genetically different. I believe in safely vaccinating.  If you are concerned, talk to your doctor. 

I also want to add that my heart goes out to all those that have been injured by a vaccine.  I believe you and I can’t imagine what you have been through. I believe that we need a better screening process, so that we can avoid as many of these vaccines related tragedies as possible.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/07/18/my-thoughts-on-jenny-mccarthy-autism-and-vaccines/

Jul 18 2013

Michigan Family Whose Autistic Son Became an Award-Winning College Runner Launches Website to Inspire Others Struggling with Autism

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Michigan Family Whose Autistic Son Became an Award-Winning College Runner Launches Website to Inspire Others Struggling with Autism (via SBWire)

AutismLighthouse.com offers advice and answers to the families of more than 1.5 million Americans living with the effects of autism. Livonia, MI — (SBWIRE) — 07/17/2013 — In 1986, when Scott Howse was first diagnosed with autism at the age of three…

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Permanent link to this article: http://www.lostandtired.com/2013/07/18/michigan-family-whose-autistic-son-became-an-award-winning-college-runner-launches-website-to-inspire-others-struggling-with-autism/

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