Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Category Archive: Medication

Dec 16 2012

#Autism, #Anxiety and Medication: Update 12/16/2012


I wanted to update you on how Elliott‘s doing now that he’s off the anti-anxiety medications.

It’s been about a week since Elliott had his last dose of Tenex. He had not been on it for too long, but long enough to know that it wasn’t the right medication for him. It’s really hard to tell if he’s doing better or not but stopping was the right thing to do.

Currently, Elliott is very moody and still anxious but he’s got a great deal on his plate. I don’t know how well any 6 year old would deal with it all. I will say that he does seem to be a bit less stressed at times.

For right now, Elliott‘s life is medication free and we are working on other ways to help him manage everything. We’re doing a lot of art type things like drawing and crafts. He really seems to respond to that.

Right now, that’s where we stand. We’re taking it one day at a time……….

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Dec 04 2012

#Autism, #Anxiety and Tenex: Pulling the plug


So we had our appointment with Dr.  Reynolds yesterday.  The main discussion centered around Elliott and how’s he’s doing on the anti-anxiety medication Tenex.

We went over all of our concerns and ultimately decided, with Dr.  Reynolds, to pull the plug on the Tenex. 

He will have to be weened off over the next 10 days.

We are also going to play around with his ADHD medication and see if it’s really benefiting him at all. 

When I say playing around, I just mean withholding it for a few days and see how he does.  This medication is very fast acting and can be started or stopped at any point. 

Hopefully, we can balance Elliott out and help him to get some traction once again. 

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Dec 03 2012

#Autism, #Anxiety and Tenex


In the morning, we have to take Elliott to see Dr. Reynolds and discuss his medications. This is going to be a serious discussion because we have some serious concerns about the anti-anxiety medication.

Elliott has become rather aggressive


while on the Tenex.  He has been self-injuring and losing his temper quite a bit and this is very much out of character for him.

Instead of addressing the anxiety, it seems to be making things worse.

What’s the point of him taking it if it isn’t going to help?  The answer of course is, there is no point.

I’m thinking that it might be best to pull him off of anti-anxiety medications altogether because he keeps having adverse reactions.

Hopefully we will get some answers and options in the morning.

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Nov 28 2012

Operation Hope: New problems and tough decisions


I mentioned the other night that we had some more concerning news about Gavin‘s autonomic issues.  His specialist at the Cleveland Clinic decided that the pros outweighed the constant when it came to adding Ativan to Gavin‘s daily medication routine. 


You may remember that this was discussed briefly before Thanksgiving the doctor that was filling in for Gavin‘s doctor was not comfortable do this and pulled the plug. 

However, Gavin doctor is back and pushing forward anyway with Ativan.

I actually picked it up from the pharmacy yesterday.  The pharmacist was uncomfortable with this as well and went on the record as stating just that. 

Here’s the problem.

Gavin‘s heart rate is still out of control. The Ativan is supposed to help suppress his heart rate and bring it down to a more normal range, thus making him a bit more stabilized. No one is disputing that.

The concern is how the Ativan is known to interact with Clozapine. Clozapine is the most tightly control medication in the country and a very hard core anti-psychotic. Clozapine can have very serious and even fatal side effects of not closely monitored. That’s why it’s so tightly controlled. 

Apparently, the combination of the Ativan and the Clozapine is known to increase the risks of side effect for each respective medication.

This is one of those situations where, as a parent, we have to weigh the pros and cons of a situation and do what we feel is best. 

In this situation, there is a increased risk of side effects.  Gavin has been on the Clozapine for well over a year and is generally considered to be at little risk for side effects now.  We don’t know that anything bad will happen.

Having said that, we do know for sure, that Gavin‘s heart rate cannot be allowed to continue the way it is.  It’s too high and basically means that Gavin is in a state of constant autonomic crisis. At least to some degree anyway. 

It basically comes down to this.  Something bad may happen by adding the Ativan.  However, something bad is going to happen if we don’t get Gavin‘s heart rate under control.

It’s a horrible position to be in.

The reason we have decided to go forward with this is because Gavin‘s doctor is among the best in the world at what he does. We also know that there is a difference between a potential problem and an accident waiting to happen.

This wasn’t something to decide lightly but based in the information at hand, this was the best decision.

It doesn’t feel good to be in this position and have to make these types of decisions. At no point in life, does anyone ever teach you to be prepared for this type of situation, let alone what to do. There’s no guide book for this.  Trust me I’ve looked. 

Of course, the symptoms we are supposed to be looking for could be difficult to notice in even the most typical of children.

The reality is, Gavin is many things but typical is not one of them.

I will say that this weighing pretty heavy on me at the moment because with Gavin not being home, I have to rely on others to makes sure nothing happens.

I hate this situation. 

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Oct 20 2012

The #ADHD Experiment: The addition of a maintenance dose


It’s officially been a week since Elliott began him #ADHD medication.  After speaking with his doctor, we have decided to add a second dose everyday.  This is known as a maintenance dose.

Basically, #ADHD medications don’t last very long in the body and in Elliott’s case, they ware off by about 3pm.


The way that is address is by adding an additional dose to be taken just prior to the first dose waring off.  Typically, this second or maintenance dose is half of the first dose. 

All this does is help to prolong the positive affects of the medication so that Elliott can derive the benefits for the rest of the day. 

So far,  everything is working really,  really well. 

He’s much more relaxed and focused.  He seems happier and more at peace as well.

It really does seem that #ADHD was a large part of his struggles.  There is of course,  still a great deal of #anxiety but it does seem to be more manageable or him right now.

After consulting with his doctors,  we are going to let things ride out for another two weeks and reevaluate things with both the #ADHD and the #anxiety at that time. That really does seem like a solid plan and Lizze and I are comfortable with it. 

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Oct 16 2012

The #ADHD Experiment: Day 4


Elliott has been on his #ADHD medications for exactly 4 days now.  Even at the low dose, he’s benefiting from it.

Obviously, he’s not really any less anxious but he’s more relaxed, at least physically.

He’s not bouncing off the walls until after the meds ware off, in the late afternoon.  He does seem to be happier and that feels good, not only for him but for me as his father.


The next step is to discuss possibly adding a maintenance dose.  So instead of taking one dose, we split it up, morning and afternoon. 

We still have to attack the anxiety but progress is progress and I’m so incredibly thankful that this is helping him.  As I mentioned before, I try to avoid the names of the medications simply because of where we live. 

I’m willing get to discuss details in private if you have questions.  Simply send me a message and I’ll get back to you.  :-)

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Oct 13 2012

The ADHD Experiment: 8 hours later


Elliott has officially begun medication to weed out his ADHD symptoms.  We are about 8 hours in and so far so good.  ADHD medications are very fast acting meaning that they begin working almost immediately.

It looks as though Elliott may have ADHD.  We have noticed a pretty significant change since this morning. 


He’s still anxious and full of worry, which is to be expected since we haven’t gotten to the anxiety yet. 

However, he’s much calmer.  I keep asking him if he’s alright because I’m so used to him literally bouncing off of everything in sight.

Instead, he’s actually just sitting down and even using his walking feet. 

Our doctor explained to us that if it’s going to work, we’ll see a significant change the first day.  At this point in the game, I would say that we have seen the improvements.  Although, I would like to see this over the next couple of days. 

We report back to the doctor on Monday and let him known what we saw.

I hate the idea of him being on medication but if it helps him to improve the quality of his life, than so be it. 

Today’s dose should be wearing off pretty soon and I’m hoping that we see a change because that would be a great indicator that the meds work for him.

Fingers crossed……..

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me.

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