Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Category Archive: Gavin

Aug 26 2013

Keeping his mind active

DiggGoogle+PinterestLinkedInRedditShare/Bookmark

I wanted to share Gavin’s latest Lego creation.  This particular creation is something from the new Ninja Turtle’s cartoon.  I believe it’s Baxter Stockman’s robot suit.

Beyond that, this is helping to keep his mind active. At this point in time, keeping his mind active is about all we can do to help.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/08/26/keeping-his-mind-active/

Aug 26 2013

Bad news: Let the battle begin

DiggGoogle+PinterestLinkedInRedditShare/Bookmark

I just got a phone call from Condorde Kids, the place the boys go for OT, PT and Speech. Bad news. Gavin will no longer be receiving treatment because insurance says that he’s too old and his scores aren’t bad enough.

Gavin’s on disability and has been for most of his life.  Up until a few months ago, that meant that he was on straight Medicaid.

Recently, everyone on Medicaid was forced to switch to an HMO provider.

Our options were very limited and we had to go with whoever would cover the most.  At the time, everything was fine and Buckeye was handling everything, they were a pain in the ass, but it worked. 

Not only has that changed and they won’t cover his therapy anymore, they also wondering t cover his full prescription of Clozapine either.  We have to try and get a doctors override before he runs out in a few days. 

Nothing ever comes easy and for a kid that falls going up the steps and can’t put the lid back on a bottle of water by himself, these therapies are extremely important.

Let the battle begin……..

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/08/26/bad-news-let-the-battle-begin/

Aug 26 2013

Gavin’s passion for drawing

DiggGoogle+PinterestLinkedInRedditShare/Bookmark

  Gavin’s passion for drawing is increasing every day.  Here is his current time favorite drawing he’s done. 

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/08/26/gavins-passion-for-drawing/

Aug 25 2013

Confessions of a Special Needs Dad: I’m scared that I’m losing my son

DiggGoogle+PinterestLinkedInRedditShare/Bookmark

This week is going to be focused on Gavin once again.  We have to figure out what’s going on with him. Tonight we saw just how much worse he’s getting. 

He managed to take the cap off of a bottle of water, while he was eating dinner.  However, he was unable to put the cap back on.  Lizze had to put it back on for him.  After dinner he fell while going up the stairs. 

Thankfully he’s okay, a little banged up but otherwise okay.

We learned something new last week.

I meant to tell you about this when it happened but never got around to it. While we were at orientation last Tuesday, Gavin shared something with us, that we were previously unaware of. 

He’s afraid of the steps at school because he’s afraid he’s going to fall. I saw the look in his eyes as he approached the steps. It was one of true fear and I have no doubt that he’s being completely sincere. Truthfully, I don’t blame him because he’s falling on our steps at home and the ones at school are much higher.  I can understand why he would find them more frightening.

Almost all of his classes are on the 2nd floor this year. 

He will have to take the steps to use the restroom,  visit the cafeteria and go to martial arts. 

The school does have a working elevator, that I’m sure may be a possibility. This is something that we are going to have to discuss with the school and possibly have added to his IEP.  I can’t imagine they would take issue with him using the elevator.

Not that this is about me, because it isn’t, but I’m having a hard time with this whole thing.

I have no idea where this journey is going to take us. I have no idea how bad this is going to get. I don’t even know where to take him for help.  The trip to John’s Hopkins hasn’t happened yet. I think that this is something we are simply going to have to really, really push for. 

We’re scheduled to see his autonomic specialist at the Cleveland Clinic in September and we can brainstorm.

I’ll be completely honest with you.  I’m scared. I don’t want to lose my son and that’s exactly what it feels like is happening right now. I feel sick to my stomach and I have tears in my eyes as I’m writing this. 

I just don’t know what we are going to do.  The only thing I know for sure is that we will never give up. We will never leave one of our own behind.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/08/25/confessions-of-a-special-needs-dad-im-scared-that-im-losing-my-son/

Aug 24 2013

Gavin was a big help

DiggGoogle+PinterestLinkedInRedditShare/Bookmark

I sent Lizze to bed around 5pm yesterday because she wasn’t feeling well. It was just me and the boys for dinner.  Things could have gone very badly but instead, everything went pretty well. 

Gavin was a big help with things around the house. 

I find him perplexing because there are some things that he can do really well and yet he can’t figure out how to do something and simple as unlock the front door. 

Either way, I’m grateful for all his help and I was sure to tell him how much I appreciated him.

Hopefully things will go as well today as they did yesterday.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/08/24/gavin-was-a-big-help/

Aug 20 2013

Special time with Gavin 🙂

DiggGoogle+PinterestLinkedInRedditShare/Bookmark

Lizze and I are hanging out with Gavin tonight. It’s been a while since we’ve had one of these nights. We are watching Star Trek tonight.

Not the old ones, but instead the remake from a couple of years ago.

Gavin loves SiFi and so we thought we could all watch it together.  It’s nice to be able to spend time like this with him. We have a few snacks and are having a good time.  🙂

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

Follow @Lost_and_Tired

Visit the My Autism Help Forums

To reach me via email, please Contact Me


Permanent link to this article: http://www.lostandtired.com/2013/08/20/special-time-with-gavin-2/

Older posts «

Switch to our mobile site