Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Category Archive: Allergies

Apr 10 2013

Is this “normal” or something to worry about?

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I received a call from Summit Academy this morning.  Gavin is in the office, in tears because his eyes hurt so bad.  The secretary told me that Gavin’s eyes began hurting and we’re really itchy.  Now they were extremely read and he was calm but upset.

I had to go bring him home. 

Lizze was sleeping because she’s not feeling well and I had to wake her up. 

Because of the RAD and the dynamic that their relationship has taken on as a result, I needed to prepare her for him to come home.  She was 100% on board and told me to bring him home quickly so she could give him some benadryl and hopefully relieve his distress.

At this point, Gavin is medicated and sleeping in his bed.

When I got to him at school, he was sitting just outside the office, sobbing. 

His eyes were very, very red.  Around his eyes almost looked bruised from him rubbing them.  Although, it didn’t show up well in the picture. 

Here’s my concern, rational or not.

He’s never had this type of reaction before.  He’s on allergy meds already but I don’t ever remember anything like this before and neither does Gavin. 

I have a million things running though my head right now. 

Is this just allergies, albeit new ones? Is this something else? Should we be concerned? Is this a sign that something is changing within him?

I may sound paranoid but when you have a child like Gavin, that charts new territory with his life threatening and  bizarrely rare health issues, there’s no way to know for sure.

Most of what we know about him was discovered somewhat by accident and because of something random thing that showed up out of nowhere.

Call me paranoid but I’m paranoid for good reason.

We are going to call his allergist/immunologist today and find out what she wants us to do.  All we can do is have him seen so that we can either discover the new chapter in his life or put our fears to rest because it’s just allergies.

My body was not meant to handle this amount of stress. :-(

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/04/10/is-this-normal-or-something-to-worry-about/

Mar 28 2013

@AkronChildrens Hospital talks about Milk allergies

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I wanted to share this with my readers because so many people deal with food allergies.  It’s even more difficult to go through life as a child with food allergies.

Dr.  Nancy Wasserbauer happens to be our doctor and she cares for Gavin, Elliott and Emmett. The boys see her for their food allergies, asthma and Gavin’s primary immunodeficiency.  She’s in charge of Gavin’s IVIG.

If you’re in the Northeast Ohio area and need help with your child’s food allergies etc, Dr. Wasserbauer is absolutely fantastic and we are so grateful for her help.

Akron Children’s Hospital just posted this video on their YouTube channel, where Dr. Nancy Wasserbauer talks about milk allergies.  I thought this might be of benefit to someone out there.  If nothing else, it will give you a better understanding of what someone with a milk allergy goes through and what causes it.

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.


Permanent link to this article: http://lostandtired.com/2013/03/28/akronchildrens-hospital-talks-about-milk-allergies/

Dec 28 2012

Adding seafood to the allergy list??

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While at Lizze’s parents last night,  Elliott had shrimp cocktail. The shrimp was free from cross contamination and completely tree nut free. 

However, Elliott’s throat became scratchy after eating only one. 

This is the second time this has happened.  However, the last time was prior to his recent tree nut allergy diagnosis and so we hadn’t put two and two together.

We gave him benadryl and he felt better. 

Elliott will be returning to Akron Children’s Hospital to have more allergy testing done ASAP. until then, we will simply avoid all seafood.

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Permanent link to this article: http://lostandtired.com/2012/12/28/adding-seafood-to-the-allergy-list/

Dec 26 2012

This is how serious food allergies can be

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I wanted to take a minute and help you to have a better understanding of what the Lost and Tired family is going through when it comes to Elliott’s food allergies. 

My hope it that by better understanding our situation, you may be able to apply what you’ve learned and the insight that you’ve gain,  to help support someone in your life,  going through something similar. 

Below you will find a letter that we received from Elliott’s immunologist/allergist. 

These are the detailed instructions provided to the school, in regards to Elliott and his allergy. I was actually surprised to see how ridged this was.  I’m still learning about just how serious a tree nut allergy is. 

If it’s this bad at school, just imagine what it’s like at home.  A family dealing with a serious food allergy can’t afford to make a single mistake. That mistake could cost the life of the child affected. 

When someone you know tells you that things have to be a certain way because their child has a serious allergy, yours is not to question but to listen and support. Life is difficult enough when your trying to make your child’s life safer.  Having to worry about people following the guidelines and understanding is very counter productive. 

Thankfully our families are on board and we don’t have to worry about that. 

However, I know many families out there aren’t so lucky. I hope the following letter helps you to become more aware of the serious and potentially deadly nature of food allergies. 

Permanent link to this article: http://lostandtired.com/2012/12/26/this-is-how-serious-food-allergies-can-be/

Dec 13 2012

Off to a good start

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Elliott actually got off to school with little resistance. I also got him to eat a hard boiled egg and some yogurt.

There wasn‘t any screaming and yelling this morning and for that I’m quite grateful.

I really dislike the days that Elliott really digs his heels in and refuses to do anything.  That doesn’t set a good tone for the day.  When we left for school this morning he was was in a really good mood

Finger crossed for a good day…….

Permanent link to this article: http://lostandtired.com/2012/12/13/off-to-a-good-start-2/

Dec 13 2012

Saying goodbye to adderall…

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The Lost and Tired family will be saying goodbye to adderall. Elliott has only been on it for about 2 months, however, he’s already not eating and is continuing to lose weight.

Adderall is something that can be stopped on a dime and discontinued. 

We will discontinue this beginning today and get in touch with his psychiatrist and pediatrician as well. They need to be kept in the loop and up to date otherwise they can’t do their jobs. 

The nutritionist is concerned because he’s losing weight and hasn’t grown in the last year.

We are not in panic mode but this is something that we have to address and bottom line, he needs to be taking in more calories. However, that’s easier said than done. 

Permanent link to this article: http://lostandtired.com/2012/12/13/saying-goodbye-to-adderall/

Dec 12 2012

Grocery shopping for your child with food allergies

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Meeting with the Nutritionist today was very informative.  There is a lot that we are doing right and quite a bit we need to address

Elliott is losing weight and we need to address that.  The problem is that he is anxious, depressed and has aspergers with a plethora of sensory issues.  Getting him to eat on a good day is hard enough. 

However, enter a serious food allergy and now meal times become even more of a challenge than they already were..

We hit the grocery store on the way home, armed with knowledge and a wealth of new information.

All I can say at this point is holy crap.

This isn’t going to be easy or cheap. I’m feeling pretty overwhelmed at the moment.

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Permanent link to this article: http://lostandtired.com/2012/12/12/grocery-shopping-for-your-child-with-food-allergies/

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