Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Category Archive: Autism

May 06 2013

Trying to remain positive can be hard

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When you face the daily challenges that my family does, it can be quite hard to remain positive.  It feels like every time I turn around, something else goes wrong. 

Unfortunately, that’s just the way our life goes. 

Having said that, this coming week is going to be exceptionally difficult.  We have places to go and no means to get there right now. 

We burned through our fuel budget a week ago with all the trips to Cleveland for Lizze. 

This week we are supposed to return, at least once, if not more. In the morning, we are supposed to call and make appointments with OB/GYN, the endocrinologist and psychiatry.  These are crucial appointments because of Lizze’s hormone problems and the ongoing damage being done until we get things back under control. 

Gavin also has his IVIG infusion on Thursday, I believe.  We are bumping up his dose because he’s bur in through the donor immunoglobulins way too fast. 

Anyway, while I am really worried about the logistics of this week, I’m also focused on something positive as well. 

It seems as though I have finally kicked this round of bronchitis I was dealing with. You may recall that I was down for over a week.  During that time, I wasn’t able to exercise, for obvious reasons. 

Beginning today, I will finally be able to start walking again. 

I’m really excited about this and it’s something that I think is positive and I’m choosing to focus on that for right now.  It’s something that I have control over and while it won’t help me put gas in the car, it will help me to be a better husband and father. :-)

I’d say that’s a positive thing…..right?

The truth is, sometimes you just don’t have control over what’s going on in your life.  As much as you wish you could change or fix things you just can’t. 

Personally, this is something that I really struggle with because I’m a fixer.

It really helps me to focus on what I can actually control and right now, that exercising and losing weight. Like I said, it’s not quick fix for anything.  Instead, it’s more of a long term, big picture kind of thing.

Right now it’s all I got and I’m going to carpe diem the shit out of this.  :-)


This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/05/06/trying-to-remain-positive-can-be-hard/

May 05 2013

I’m trying to be a better parent

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One of the things that I’m making a concerted effort to do, is be a better parent.

We have a lot going on and I’m personally battling with depression as well.  Sometimes motivating myself to do things with the boys is really difficult. 

It’s not that I don’t want to, it’s just that I’m always so tired from everything I have to do and all the stress I’m under. 
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Having said that, I’m really wanting to be a better parent and spend more time with the boys and provide them with a life outside the walls of our house. Things as simple as going outside to play are important. 

One of the parts to this for me is spending more time outside. 

The problem is that our neighborhood is not safe and we don’t have the money for gas to always drive somewhere. 

What I’m doing is this. I take the kids outside, with both dogs and typically only when their are others outside as well.  I just sorta keep an eye out for questionable cars and the dogs keep track of people walking by. 

We can’t live in fear but we still have to be safe.  At least as safe as possible. 

In truth, we could be in  the house and someone could drive by and fire shots into our windows.  Honestly, that’s happened about as much as the random shooting of people just outside in their yards or walking their dogs. 

Until we can relocate, I just have to do whatever I can do to find balance. 

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/05/05/im-trying-to-be-a-better-parent/

May 04 2013

Another random shooting

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There was another shooting within earshot of our house on Thursday.  It took place a few blocks north of us and is honestly really scary. 

This poor and very innocent man was simply walking his dog, when a van pulled up and someone inside, shot him in the chest.

This appears to be a totally random. 

My guess would be gang related. 

How are we even supposed to feel safe stepping outside of our house? How are we supposed to let the boys even play in the yard?

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/05/04/another-random-shooting/

May 03 2013

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Permanent link to this article: http://lostandtired.com/2013/05/03/giveaway-free-conscious-box-full-of-eco-friendly-goodies/

May 03 2013

A post about hope and Mommy parts

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Shortly after publishing my last post, Lizze’s doctor called and they spoke for a bit about what’s going on. 

We received some clarification of a few things and learned some new ones as well.  This was really a good news/bad news kind of phone call.

The good news is that as of right now, she’s not yet in menopause.  :-)

While her LH levels are really high, her FH levels are normal, indicating that she is not in menopause. She has something called……..crap, I can’t remember what it’s called now. 

Dammit.

Anyways, here’s where the good news/bad news comes into play. 

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Basically, her ovaries aren’t working right.  That’s the bad news.  The good news is that she has ovaries.  That’s actually really, really good news. 

Essentially, the doctor said that her ovaries are acting as though they are in menopause at times and this is wreaking havoc on her body.  At this point we don’t know why this is happening but basically, sometimes they work and sometimes they don’t. 

Unfortunately, she can’t be treated with estrogen because of her history of clots. 

I know I’m forgetting something but it’s been a long week and my brain isn’t quite firing on all cylinders right now.  

Her doctor did say that this going to require a team approach.

This team with consist of her (OB/GYN), an endocrinologist and a psychiatrist.  She also said that she wants Lizze back in next week because the longer this goes untreated, the more damage is being done to her body. 

Right now she’s a total mess and I mean that in the most loving and respectful way but it’s true. 

She’s um……how to put this lovingly…..really sorta grumpy. That totally outside of her control, but it’s not much fun for anyone. Her hair is grey and falling out, she has a serious vitamin D deficiency, there’s concern about bone loss, she’s not eating, can’t sleep at night but can’t stay awake during the day, is in a great deal of pain and severely depressed.

On the bright side, a lot of this is linked to the hormone imbalance but with any luck and if there is indeed a God,  we may be able to finally get her some relief.

Again, I know I’m forgetting some of the details but this is a good way to begin the weekend. 

Lizze feels like she’s knows more and has a direction to go in.  If I’m not mistaken, there may even be a glimmer of hope left after all.  :-)


This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/05/03/a-post-about-hope-and-mommy-parts/

May 03 2013

Therapy for kids with Autism, shouldn’t be a privilege, it should be a right

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In the last day or so alone, Emmett has fallen almost half a dozen times.  He’s fallen up the stairs and down the stairs. 

He tripping over his own feet and doesn’t brace himself for impact, if that makes sense..

One of the things that OT was helping with was this sorta of stuff.  He was working on his coordination and strength.  While he was receiving OT, he was doing much, much better. 

Unfortunately, insurance deemed that he would never make any progress and so they cut him off. 

Since that time, he’s been falling more and more often. 
We have to get him in for a reevaluation and see if we can get him covered once again.

Therapy for kids with Autism, shouldn’t be a privilege, it should be a right.

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This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



Permanent link to this article: http://lostandtired.com/2013/05/03/therapy-for-kids-with-autism-shouldnt-be-a-privilege-it-should-be-a-right/

May 02 2013

Do you ever lose track of your kids?

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It seems like every time I walk out of the room, Emmett John disappears.  When I walked upstairs to wake Lizze up so I could go he get Elliott from school, Emmett was sitting right there on the couch.

When I came back downstairs a few minutes later, he was nowhere to be found.  ;-)

All I found was this really lumpy blanket and a strange giggling coming from it.  :-)

I’m a huge believer in letting kids be kids as much as possible.  There will be plenty of time for them to be grownup and serious down the road. 


This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-)

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-)

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.



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Permanent link to this article: http://lostandtired.com/2013/05/02/do-you-ever-lose-track-of-your-kids/

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