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When you face the daily challenges that my family does, it can be quite hard to remain positive.  It feels like every time I turn around, something else goes wrong. 

Unfortunately, that’s just the way our life goes. 

Having said that, this coming week is going to be exceptionally difficult.  We have places to go and no means to get there right now. 

We burned through our fuel budget a week ago with all the trips to Cleveland for Lizze. 

This week we are supposed to return, at least once, if not more. In the morning, we are supposed to call and make appointments with OB/GYN, the endocrinologist and psychiatry.  These are crucial appointments because of Lizze’s hormone problems and the ongoing damage being done until we get things back under control. 

Gavin also has his IVIG infusion on Thursday, I believe.  We are bumping up his dose because he’s bur in through the donor immunoglobulins way too fast. 

Anyway, while I am really worried about the logistics of this week, I’m also focused on something positive as well. 

It seems as though I have finally kicked this round of bronchitis I was dealing with. You may recall that I was down for over a week.  During that time, I wasn’t able to exercise, for obvious reasons. 

Beginning today, I will finally be able to start walking again. 

I’m really excited about this and it’s something that I think is positive and I’m choosing to focus on that for right now.  It’s something that I have control over and while it won’t help me put gas in the car, it will help me to be a better husband and father.

I’d say that’s a positive thing…..right?

The truth is, sometimes you just don’t have control over what’s going on in your life.  As much as you wish you could change or fix things you just can’t. 

Personally, this is something that I really struggle with because I’m a fixer.

It really helps me to focus on what I can actually control and right now, that exercising and losing weight. Like I said, it’s not quick fix for anything.  Instead, it’s more of a long term, big picture kind of thing.

Right now it’s all I got and I’m going to carpe diem the shit out of this. 

This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me.

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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One of the things that I’m making a concerted effort to do, is be a better parent.

We have a lot going on and I’m personally battling with depression as well.  Sometimes motivating myself to do things with the boys is really difficult. 

It’s not that I don’t want to, it’s just that I’m always so tired from everything I have to do and all the stress I’m under. 

Having said that, I’m really wanting to be a better parent and spend more time with the boys and provide them with a life outside the walls of our house. Things as simple as going outside to play are important. 

One of the parts to this for me is spending more time outside. 

The problem is that our neighborhood is not safe and we don’t have the money for gas to always drive somewhere. 

What I’m doing is this. I take the kids outside, with both dogs and typically only when their are others outside as well.  I just sorta keep an eye out for questionable cars and the dogs keep track of people walking by. 

We can’t live in fear but we still have to be safe.  At least as safe as possible. 

In truth, we could be in  the house and someone could drive by and fire shots into our windows.  Honestly, that’s happened about as much as the random shooting of people just outside in their yards or walking their dogs. 

Until we can relocate, I just have to do whatever I can do to find balance. 

This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me.

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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There was another shooting within earshot of our house on Thursday.  It took place a few blocks north of us and is honestly really scary. 

This poor and very innocent man was simply walking his dog, when a van pulled up and someone inside, shot him in the chest.

This appears to be a totally random. 

My guess would be gang related. 

How are we even supposed to feel safe stepping outside of our house? How are we supposed to let the boys even play in the yard?

This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me.

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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In the last day or so alone, Emmett has fallen almost half a dozen times.  He’s fallen up the stairs and down the stairs. 

He tripping over his own feet and doesn’t brace himself for impact, if that makes sense..

One of the things that OT was helping with was this sorta of stuff.  He was working on his coordination and strength.  While he was receiving OT, he was doing much, much better. 

Unfortunately, insurance deemed that he would never make any progress and so they cut him off. 

Since that time, he’s been falling more and more often. 
We have to get him in for a reevaluation and see if we can get him covered once again.

Therapy for kids with Autism, shouldn’t be a privilege, it should be a right.

This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me.

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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It seems like every time I walk out of the room, Emmett John disappears.  When I walked upstairs to wake Lizze up so I could go he get Elliott from school, Emmett was sitting right there on the couch.

When I came back downstairs a few minutes later, he was nowhere to be found. 

All I found was this really lumpy blanket and a strange giggling coming from it. 

I’m a huge believer in letting kids be kids as much as possible.  There will be plenty of time for them to be grownup and serious down the road. 

This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.

Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me.

For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.