Lost and Tired

July 25, 2013

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Our morning has only been here a short while and already it’s filled with screaming and meltdowns. It’s like Emmett started his day overstimulated.

Perhaps he didn’t sleep well last night or maybe had bad dreams.

Two things set him off this morning. The first thing was his pet ball. This is a light up bounce ball on an elastic string that straps to his wrist.

He drags this thing behind him and it gets caught on things or tangled up. It got both caught up and tangled this morning and he just lost it.

After we got through that crisis, he was definitely primed and ready to explode.

The next explosive meltdown happened after he got himself dressed. The shorts he put on touched his knees. That’s it. His shorts touched his knees and rather than change them or take them back off, he had a massive meltdown.

Lizze and I tried for 20 minutes to help him through it.

When this meltdown passed, he wanted dry Ramon Noodles for breakfast. We decided not to pick that battle and I think that it was a wise decision.

I believe he gets a sensory fix off of the dry crunchy noodles and it helped to ground him. It certainly helped this morning, there’s no question about that.

Right now he’s crunching on his breakfast and playing Pokemon with his brothers. Hopefully, his day has changed course and he’s headed to a better destination. At this point, the outlook is promising but we won’t know until we get there.

When your kids have a meltdown, is there a calming technique that you have found that works well?

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Tags: Autism, Autism Help, ball, email, Forums, HATES, morning, My Autism, overstimulated, Sensory

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Jul 25 2013

Uncertainty

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July 25, 2013

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There are a great many things that I have to cope with on any given day. To be completely honest, I don’t even realize that things are as bad as they are anymore. After all, this is all I know.

Having said that, there is one thing that I truly struggle with and that’s uncertainty.

Uncertainty is one of those things that eats me alive and keeps me awake at night. I would guess that many special needs parents aren’t super fond of uncertainty and I can’t say that I blame them.

For me personally, it’s essentially fear of the unknown. I don’t know what tomorrow brings and based solely on what yesterday dumped in our lap, I feel like I have reason to fear the unknown.

There are times that I can cope with this and times that I don’t do so well.

Right now I’m in a place that I’m not coping as well as I could be. We’ve lost quite a few family members this year, some were expected and others were completely unexpected.

Lizze has calling hours for her great uncle today and my grandfather was diagnosed with cancer this week. Last night we learned that it’s spread to his bones.

It’s a lot to take in and process.

Not that I needed to be reminded but this year has taught me just how fleeting life can be and how uncertain tomorrow is.

The truth is, you never know what tomorrow will bring with it.

In my life, there is so much uncertainty. Will my new job work out, how will we stay afloat or when will the other shoe drop? However, nothing is worse than the uncertainty of Gavin’s future and that weighs very heavy.

Because so much remains unknown about his health, we have no idea what to expect or just how bad things are going to get.

It’s torture.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Tags: Autism, Autism Help, email, Forums, HATES, My Autism, site, typos, uncertainty, WordPress

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Jul 25 2013

The hits just keep coming

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Thoughts and Prayers

July 25, 2013

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I just heard from my Mom about my grandfather. Unfortunately, it’s not good news. The cancer has spread to his bones.

My Mom and Dad are going to Cleveland to see him at some point tomorrow.

I would love to go with them but Lizze has calling hours at about the same time. Please keep my family in your thoughts and prayers. This is a difficult time for all of us.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Tags: Autism, Autism Help, email, Forums, HATES, My Autism, site, time, typos, WordPress

Permanent link to this article: http://www.lostandtired.com/2013/07/25/the-hits-just-keep-coming/

Jul 24 2013

We lost another member of our family this week

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Thoughts and Prayers

July 24, 2013

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Please keep Lizze’s family in your thoughts and prayers. She lost her great uncle this week and calling hours are Thursday evening.

We’ve lost 8 friends and family members this year and I wouldn’t wish that on anyone.

I really appreciate your positive thoughts…

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Tags: Autism, Autism Help, email, Forums, HATES, member, My Autism, site, week, WordPress

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Jul 24 2013

Thank you to the supervisor at Jobs and Family Services

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July 24, 2013

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There is finally a light at the end of the tunnel and we should arrive at that destination no later than Friday afternoon.

Lizze got a call from a supervisor at Jobs and Family Services this afternoon.

She explained that she can’t do anything until Friday. If our caseworker hasn’t pushed the button on my family’s account, her supervisor will do it for her.

I’m not sure that I understand the logic of this policy but all we have to do is make it until Friday. Basically, we have one day left and we will be able to finally go full grocery shopping for the first time since the end of June.

It’s been a really, really long month but we’ve made it this far. We’ve had some help along the way and for that, I’m humbly grateful.

I was able to pick up a few odds and ends today but nothing significant. Friday will be a really good day and I’ll put something in the crock pot.

I’m so grateful that we don’t have to try and make it through the weekend.

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Tags: Autism, Autism Help, email, Family, Forums, HATES, My Autism, site, typos, WordPress

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Jul 24 2013

He’s being a little stinker

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July 24, 2013

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Gavin‘s having a rough day. He’s been very, very bossy with his brothers. They aren’t liking this much and Gavin just doesn’t seem to get it.

There’s been a bit of tension and a few timeouts.

I’m not sure what’s gotten in to him today but he’s being a little stinker……..

This site is managed almost exclusively via WordPress for Android. Please forgive any typos as autocorrect HATES me. 😉

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Tags: Autism, Autism Help, email, Forums, Gavin, HATES, My Autism, site, typos, WordPress

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Jul 24 2013

Today’s #Autism Fact: 07/24/2013

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Autism Fact